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Links to Useful Sites

  • www.counselling-directory.org.uk - The purpose of the site is ultimately to provide the UK with a huge counselling support network, enabling those in distress to find a counsellor close to them and appropriate for their needs. This is a free, confidential service that will hopefully encourage those in distress to seek help. The website also contains a number of sections on emotional disorders (types of distress section) and provides some useful statistics. Every counsellor on the site who has submitted their profile has either sent a copy of their qualifications and insurance cover to us, or is registered with a professional body online with recognised codes of ethics and practice, this way we can be assured of their professionalism.
     
  • DIPEX congenital heart disease module - experiences of UK patients who have congenital heart disease in video, audio or text format
     
  • Down's Heart Group - a UK website which provides information on some common types of congenital heart defects (Atrial Septal Defect, Atrioventricular Septal Defect, Fallot's Tetralogy, Persistent Ductus, Ventricular Septal Defect)
     
  • Grown Up Congenital Heart (GUCH) Patients Association - a UK charity offering support for families of teenagers or adults with congenital heart defects and information sheets including explanations of heart surgery that patients might undergo and advice on living with the condition
     
  • Heart Children - a charity based in Ireland offering detailed information on the many types of congenital heart defect and support for families
     
  • Heart Line - A voluntary organisation set up to offer help and support to children with heart disorders and their families regardless of how slight or severe the condition may be.
     
  • Heart Link – a charity based at Glenfield Hospital, Groby Road, Leicester LE3 9QP which offers parental support to parents of children with congenital heart conditions.
     
  • Heart Point - American site providing information on some specific types of congenital heart defects and also health tips for living with heart disease.
     
  • Little Hearts Matter - a UK charity for families affected by Hypoplastic Left Heart Syndrome
     
  • Pediheart - a USA site with separate sections for children, parents and professionals and access to medical journals
     
  • Pulse Oximitary Study Information - Pulse oximetry as a screening test for congenital heart disease in newborn babies
     
  • Royal Children's Hospital - an Australian Cardiology unit with an A to Z of cardiology topics including many congenital heart

 

National Contacts