INR Self-monitoring Campaign

There are more than 1.2 million people in the UK on warfarin of which less than two percent benefit from self-monitoring, despite evidence that it can cut the risk of death by nearly two-fifths and more than halve the risk of strokes.
The AntiCoagulation Self-Monitoring Alliance (ACSMA) is promoting a campaign with the specific objective of achieving greater access via prescription to INR self-monitoring technology for patients receiving warfarin therapy. The alliance is also seeking to raise awareness of the benefits of self-monitoring and aims to ensure that patients are equipped to have informed discussions with their healthcare professionals on this topic.
Young at Heart, along with a number of other charities is supporting the ACSMA campaign, as this change would make such a difference to many families who we support. Young at Heart already provide with the help of fundraisers machines to families who need them, which helps prevent families having to make regular trips to hospital to have a short INR test carried out. This campaign is all about minimising or indeed preventing travel time, disruption to parents work, disturbance to the child's schooling.

Please show your support and make a difference, simply sign up today by visiting www.acsma.org.uk

Let's send out a strong message of support now to secure better support for all heart children in the future!


Pulse Oximetry Screening

Last year we told you about an exciting research project which took place at the Queen Elizabeth Hospital about the early detection of heart conditions in new born babies. This was called 'PULSE OXIMETRY SCREENING' which you can read about in more detail below. This simple and painless test could help save lives. This simple and painless petition could also help save lives. Don't ponder for too long. Please play an active part today and help prevent other families having to go through the trauma of the late detection of a heart condition.

Responsible department: Department of Health
This petition calls upon the Government to roll out Pulse Oximetry screening for all newborn babies in the UK.

The test is simple, quick, painless and cheap taking just a few minutes alongside other existing newborn checks. Research shows that the test will significantly improve the detection of congenital heart conditions in babies, which are the most common birth defect, picking up three quarters of heart conditions. Early detection of CHD is essential to reduce distress, prevent further physical damage to children and to help save lives.





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