Children's Heart Association - a
UK charity which provides support for families with child heart
problems. The site provides a list of heart-related medical terms,
what to expect in intensive care and a list of common heart
drugs.
The Charlie Ramsey Research Fund –
The Charlie Ramsey Research Fund was set up by Sandra Ramsey
following the birth of her daughter - Charlie Grace Ramsey. Charlie
was born with Complex Congenital Heart
Defects.
Children's Heart Federation - a UK
charity providing information on coping with all aspects of life as
a family affected by heart problems and a newsletter of current
issues on the subject.
Children's Health Information Network -
USA based site with International information provided on
congenital heart disease and an extensive list of links to websites
on specific heart defects
www.counselling-directory.org.uk
- The purpose of the site is ultimately to provide the UK with a
huge counselling support network, enabling those in distress to
find a counsellor close to them and appropriate for their needs.
This is a free, confidential service that will hopefully encourage
those in distress to seek help. The website also contains a number
of sections on emotional disorders (types of distress section) and
provides some useful statistics. Every counsellor on the site who
has submitted their profile has either sent a copy of their
qualifications and insurance cover to us, or is registered with a
professional body online with recognised codes of ethics and
practice, this way we can be assured of their
professionalism.
Down's Heart Group - a UK website
which provides information on some common types of congenital heart
defects (Atrial Septal Defect, Atrioventricular Septal Defect,
Fallot's Tetralogy, Persistent Ductus, Ventricular Septal
Defect)
The Somerville Foundation - a UK
charity offering support for families of teenagers or adults with
congenital heart defects and information sheets including
explanations of heart surgery that patients might undergo and
advice on living with the condition
Heart Children - a charity based
in Ireland offering detailed information on the many types of
congenital heart defect and support for families
Heart Line -A
voluntary organisation set up to offer help and support to children
with heart disorders and their families regardless of how slight or
severe the condition may be.
Heart
Link – a charity based atGlenfieldHospital,
Groby Road, Leicester LE3 9QP which offersparental support to parents of children with
congenital heart conditions.
Carers
Direct- a
national information, advice and support service for carers in
England.
Contact a family,
Helpline: 0808 808 3555 - free for parents and
carers (10am - 4pm Mon-Fri) Email: info@cafamily.org.uk
Supporting families caring for disabled children and children with
specific health conditions, including rare disorders. Produce a
range of factsheets on issues including benefits, special
educational needs and social services
assessments.
Ellis van Creveld -
a website written by a parent
for other parents. Ellis van Creveld Foundation, Farthingale Farm,
Hackmans Lane, Purleigh, Essex CM3 6RW